Every day is a battlefield for truth beyond what a broken mind is telling my son [due to severe Intractable Epilepsy resulting in Bipolar Disorder, Asperger's and On-Set Schizophrenia tendencies]. Few things hurt more than when he questions our love for him, our pure and overwhelming affections. When a rage or intense thoughts of rejection flood his mind, I desperately try to encourage him to trust. With my heart spilling into my voice and my eyes locked on his, I tell him, "You can trust me, my sweet boy." I am learning that more times than not I have to forget about the behavior, let go of the jagged edged words, pay no attention to the eyes looking on and sometimes judging ignorantly, and gaze directly into his eyes and never give up on affirming my love. I can't grow weary of talking my boy through the moments that are threatening joy, peace, and even life.
Nine months ago I was a no-nonsense-make-no-excuse-zero-tolerance kind of mom. Fits, talking back, disobedience were all immediately handled and really weren't a big part of our lives. Today, rages, physical aggression, and defiance are fully on the table and, more than ever, I have to swallow my pride, humble my heart, and walk in grace. What matters to me now is gaining my son's trust every hour that it is in question. That certainly doesn't mean that we wait on him and foot and dismiss him from every and all consequence, but our priorities, as a family, have definitely changed. Learning the complex balance of consequence and grace is so trying, especially in a situation when bizarre, "bad" behaviors are merely symptoms of [serious] illness. We continually pray for discernment, wisdom and clarity as we buckle ourselves in on the roller coaster, that is our life.
Just as Evod learned, when he was two and a half, that even when the clouds cover the moon, it's [the moon] still in the sky- the same goes for God; His love, His grace, His strength, His hope. Evod questions love, friendship, good intentions and purpose... in life, but I know God is moving in and through him in spite of doubt, fear, and [literal] brokenness. Stronger than the wind, bigger than the sun and moon, His love is for us; our eyes don't have to see it. It's there.

Jasmine, I had no idea of the extent of Evod's diagnosis. Thank you for being so real and honest and raw about what you are going through. I know God is using you to touch and heal others. I will continue to lift you up in prayer.
ReplyDeleteBlessings,
Kristen
I found your blog through a friend, and while our circumstances are different, I understand your heart here and the struggle... pain you are going through. I haven't found the courage to blog about what we are currently facing but I especially relate to your statement: "So many moments in my day are just too big for me. I feel like they could swallow me whole and leave no trace of me, but every day I am reminded that it is okay for me to be real and even boast in my weakness, because God is always strong-" Thank you for sharing your heart...
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